Bad Days

Some days are bad. Bad in terms of work, or blood glucose, or life in general. Today was a combination of all three. And I wasn’t the only one.

So what do you do when the day is over?

I made a simple dinner and drank wine. I have also continued to take correction doses for my high blood glucose over. And over. And over.

Chris propped himself up with extra pillows on the couch to watch a Marvel film – with commentary.

We don’t fight, which I’m thankful for. But tonight I might coerce him into reading Alexander and the Terrible, Horrible, Very Bad, No Good Day out loud to me. Or maybe I’ll read it to him.

Tomorrow is a new day, right? Right. Something else to be thankful for.

Friday Photo: This is Your Captain Speaking

Ladies and Gentlemen, this is your captain speaking. Sorry about the turbulence a good 20 hours ago or so – mini pizzas apparently had their way with us. You’ll be pleased to know that currently, three hours after dinner, we’re looking at a smooth trip into the weekend. So why not sit back, relax and enjoy the ride?

Weekend CGM

Happy weekend, y’all!

DiabeteSpeak

Glossary Word CloudWhile writing these blog posts, I have found myself straddling between writing for PWDs and writing for those who don’t have diabetes. To help bridge the gap, I decided to add a glossary page. The terms currently on the page are everything I could think of in a single evening. But I would love, love, love if you could help me out and let me know what I’m missing, what definitions could be improved, etc. So here’s the link: (more…)

Anticipation-Induced Anxiety

imageedit_193_5619428824“If it’s not broken, why fix it?”

That is what Chris has been saying about the idea of trying an insulin pump every time I asked him about it for the last five years.

It’s a fair question. He was content to continue with multiple daily injections and within a year of dating and pump frustrations of my own, I actually shifted over to his style and went back to injections for 3.5 years. But gradually, “it” started to become broken. We started hearing his CGM go off in the early hours of the morning, indicating that his blood glucose was rising. Well, no, “we” didn’t hear it. Usually it was just me. But even so, this blood-sugar-rising-in-the-wee-morning-hours issue is common among many people with diabetes and is known as dawn phenomenon. And it was starting to be a problem for my sweetheart. (more…)

Rub-a-dub-dub, No Pumps in the Tub

Disconnecting an inset infusion siteYesterday after I wrote about taking a “free shower” I got a few questions about disconnecting my diabetes devices to take a shower. Yes, I take my pump off. I think most people these days do. I remember when I received my first insulin pump back in 2002, it came with a rather sturdy plastic bag attached to a cord that one could hypothetically wear around the neck and shower with the pump on. Did anyone use that thing? Does anyone wear their pump while showering now? I figure up to 30 minutes is fine to be “unplugged” – and if I really need to, I can take a little extra insulin one my pump is attached again to make up for what I missed. But that did lead me to think about when I disconnect my pump. Here are some of the other times: (more…)

There is No “Free Shower”

Last night I had the joy of taking what is often referred to as a “free shower.” As you might assume, this involves the act of bathing. But it’s not because I paint my face blue and shout about freedom. No, it’s special because it’s the opportunity to bathe without any diabetes device ports, infusion sets, or devices plugged in somewhere on your body. Every now and then, my CGM and my infusion site need to be changed at the same time – and when that happens, I shower without having to avoid getting adhesive too wet or snagging my shower poof on the plastic that is stuck to my body. But when I’m finished, I have to face all of this:

imageedit_178_2557498741

 

For those of you who may not recognize these things, I’ve got my new CGM sensor on the left. It doesn’t stick to my body terribly well, so I also use medical adhesive when I put a new sensor in. On the right, there is a new cartridge for my pump, a syringe and needle to use to get the insulin from the vial into the cartridge, then the infusion set, including needle, cannula, and tubing.

So, no problem. I got this. I find new real estate on my body for these things (setting each device at least three inches from each other). First up is the CGM: alcohol swab, push one needle in to insert the sensor (then take out the needle), snap in the transmitter, all good to go. Then on the other side, I need to draw insulin from the vial to inject into the cannula, fill the tubing, use another alcohol swab, put in another needle to insert a cannula (then take out the needle), plug in the tubing, fill the cannula, then viola! All set to go!

And here is what I’m left with:

diabetes trash

 

A whole lotta diabetes trash. Just like there is no “free lunch” there is, apparently, also no “free shower.”

Proud (a love letter)

I remember the first day it came up in the spring of 2012.

“Wow – someone thinks I should apply as an ePatient for some conference at Stanford. I would never have thought to do that…”

“What’s the conference?”

“I hadn’t heard of it before – it’s something new. MedX, I think.”

“Cool. Are you going to apply?”

Chris looked nervous. “Maybe. Not sure what I’d say in the application. But, maybe?”

And he applied. And he was not accepted. Then, just a few weeks before the conference, there was an opening and he was accepted as an ePatient. And then he was in Stanford and I was left at home with cats and living vicariously through tweets and other posts. (more…)